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New Awareness Project Guides and Tool Kits

Awareness Saves Lives! Interested in raising awareness in your community but not sure how? Check out our new awareness tool kits. There's a kit for everyone from organizing an awareness table to doing a school focused project or raising awareness among medical professionals. These new guides/tool kits provide step by step information on how to organize these awareness activities and provide you with everything you will need to host a successful awareness event. Visit, click "Get Involved" and join the fight for victory today!

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Blog Posts


Posted by Lisa Schaefer on September 15, 2014 at 1:53pm

Time to Smile

Posted by DeadTurtle on August 27, 2014 at 12:47pm — 1 Comment

My recent blog post regarding Marfan Syndrome

Posted by DeadTurtle on August 26, 2014 at 10:21am


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