Longtime NMF supporter and Marfan Mom Ann Reinking joined Rosie O'Donnell on her new Sirius Satellite Radio Show on Tuesday, November 10th to talk about the new documentary "In My Hands."
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Posted by Sharlini Nambiar on March 16, 2010 at 9:28pm
Posted by Amy Sanders on March 16, 2010 at 1:17pm
So this is a little update from the last time I was on here. I just recieved my records from a couple years ago. I don't recal every being told my tricuspid valve had some regurigitation back then, I thought it was a new diagnosis a month ago. Turns out it was not. My Aortic Root was at 3.8cm in 2007, and I have no idea what the current echo showed. other that prolapse from both the Mitral Valve and the Tricuspid valve. From what I understand 2-3.5cm is norma;, over 4cm is somthing to be watc
… ContinuePosted by Michael Schenck on March 15, 2010 at 2:05pm — 1 Comment
Hey long time no post! I hope all is well with my friends. I am still doing well after my surgery. I did have to go back in and have the staples removed and since then my scar has turned into a "Keloid" ugly and thick. I was complaining to my husband one day about how ugly it is and he said, "It's not ugly ~ it means you're alive" That put it in to prespective for me.
Now I have a weird question. On Feb 13th my son was in a serious car accident and my mini van was totalled, tha
… ContinuePosted by Janet Bennett on March 9, 2010 at 11:51pm — 4 Comments
Someone asked me to tell a little about myself in greater detail, so, here goes it. I am Kaitlyn Rene', I am 14, and... I have Marfan. I am 6' 1", and I was diagnosed at about age 7, and had a pectus excavatum repair shortly after. My mother passed away from an aortic aneurysym in October of 2006, naturally, she also had the disease. My grandfather passed away in 2002, he had Marfan, but he passed of Cancer. I have scoliosis, glasses, and I am on Atenolol. I am not thin, But st
… ContinuePosted by Kaitlyn Smart on March 4, 2010 at 3:52pm
April 11, 2010 from 2pm to 3:30pm – Memorial Regional Hospital South
May 6, 2010 at 7pm to May 9, 2010 at 5pm – Harlan Adams Theater
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