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New Awareness Project Guides and Tool Kits

Awareness Saves Lives! Interested in raising awareness in your community but not sure how? Check out our new awareness tool kits. There's a kit for everyone from organizing an awareness table to doing a school focused project or raising awareness among medical professionals. These new guides/tool kits provide step by step information on how to organize these awareness activities and provide you with everything you will need to host a successful awareness event. Visit, click "Get Involved" and join the fight for victory today!

Latest Activity

Cathie Burns is now a member of Connect
Heather Silva posted a status
"My 9 yr old daughter has Marfan's and we would love to connect with other families that are affected by Marfan's. We're near Pittsburgh PA."
Heather Silva is now a member of Connect
Beth Ruby commented on Maya Brown-Zimmerman's group Dural Ectasia


Some marf traits but cardiac mri came back fine. Some questions! 2 Replies

Started by Brian Vasconi in Uncategorized. Last reply by Dave C May 30.

Austin, TX Doctors

Started by Courtney C in Uncategorized May 28.

Any other archers with Marfan Syndrome? 3 Replies

Started by Edward Seales in Uncategorized. Last reply by Courtney C May 28.


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