NMFconnect

Ann Reinking and "In My Hands" documentary featured on Sirius' Rosie Radio

Longtime NMF supporter and Marfan Mom Ann Reinking joined Rosie O'Donnell on her new Sirius Satellite Radio Show on Tuesday, November 10th to talk about the new documentary "In My Hands."

You can listen to the whole segment on the NMF website at http://marfan.org/marfan/4007/Rosie-Radio-on-Sirius-Satellite-features-In-My-Hands-Documentary.

NMF 2009-10 Membership Campaign


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Latest Activity

Heather commented on Jennifer Buffone's group 'Living with Marfan: 40-50 Years Olds Support'
Super Walmart means more walking :(
48 minutes ago
april lee schmidt replied to Russell Chaney's discussion '62 Years With Marfan's' in the group Living with Marfan: 40-50 Years Olds Support
I was a "pirate's dream' sunken chest . So glad those days are over :-).
2 hours ago
Janet Bennett commented on Jennifer Buffone's group 'Living with Marfan: 40-50 Years Olds Support'
NO CANCER!!!!!!!!! Amen! Echo came back normal for me - which is still mvp etc. but the repair is still holding strong. Got a part time job with Proctor & Gamble, I start the 14th (As long as I pass the physical - lol) My son goes this weekend to Ca…
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Debra Stephens replied to Debra Stephens's discussion 'Recommend Cardiologist PLEASE!!' in the group Houston Marfan Group
Thanks Larry,I'll check these names with my insurance!
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Forum

Sherry Heldt

Inguinal hernia 6 Replies

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Merissa louks

NEEDS HELP 1 Reply

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jim

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Groups

Blog Posts

Dustin Hlibichuk

Fear and Loathing in Iowa?

Am I afraid to die to freak circumstance? No. Do I have a death wish? Hardly.


I have through all of this nonsense learned that things other than normal causes of death could indeed end me. I'm okay with that. I survived heart surgery after all. People who may wish me harm are the furthest thing from my mind. Guns and knives? what harm can they do me that a slip on the ice or a car accident couldn't?



This mindset can of course be dangerous. Being s
… Continue

Posted by Dustin Hlibichuk on August 25, 2010 at 11:36pm — 4 Comments

Paul Rafferty

Experience with Dislocated Lenses.

I'm 56 year old and found out in ca 1960 (age ca 5yrs) that my lenses were dislocated in both eyes. I was living in Stoke on Trent, England at the time and attended the North Staffordshire Royal Infirmary Opthalmology Department to monitor the condition, I was told by the doctors that something would be done for me when I stopped growing and was able to decide for myself. My lenses were dislocated upwards but I don't know/remember how bad. Without glasses I could only see 'detail-less' shapes/fu… Continue

Posted by Paul Rafferty on August 25, 2010 at 3:30pm — 3 Comments

Jasmin Smith

Captain Obvious

This is to all of the Captain Obvious' out there (and I know there are many because they ALL seem to talk to me when I am out and about OR I work with them)



To you all...



Let me just clarify some things for you



Then you can stop making obvious statements



YES, I know I


… Continue

Posted by Jasmin Smith on August 24, 2010 at 4:27pm — 4 Comments

Justin Cohen

Perspective

When I stand in a group at a concert, I have the BEST seat in the house.


When I go in for a Job Interview, I am remembered because I'm tall.



When I get stared at I know exactly why they are looking at me, I don't have to guess or wonder.



When I look up and pray, I am comforted that I am closer to God than anyone else I know.



When I start to wonder why I inherited a disease none in my family b
… Continue

Posted by Justin Cohen on August 21, 2010 at 2:33am — 3 Comments

daiana jean louis

life with marfan

When u live in a country where everyone is short and u r tall it's not easy ,


When all ur realatives r short and big unlike u who's skinny it's not easy.


But u try hard all the time to ignore all of the ignorants who dont know what they r talking about.


When u smile when others make a not so nice remark

… Continue

Posted by daiana jean louis on August 16, 2010 at 2:20pm

 
 
 

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