2013 NMF Conference Registration Now Open!
For detailed information on all Conference programs, to appply for a scholarship or free patient health assessment, to make your hotel reservation and to register
click here.
New Resource for Teachers
Marfan Syndrome: Need-to-Know Information for the Teacher is a new online resource that provides teachers with basic information about Marfan syndrome, information on classroom accomodations for students with Marfan syndrome incluiding information about IEPs and 504 orders, special information and physical activity guidelines for PE teachers, and classroom activities to help other children and teens better understand what students in their school who have Marfan syndrome cope with. View this online resource now.
New Awareness Project Guides and Tool Kits
Awareness Saves Lives! Interested in raising awareness in your community but not sure how? Check out these new awareness project kits, "RENT Awareness Campaign Guide" and "Tell the World About Marfan Syndrome: A Guide to Planning An Awareness Table." These new guides/tool kits provide step by step information on how to organize these awareness activities and provide you with everything you will need to host a successful awareness event. Visit the National Marfan Foundation's online Volunteer Tool Kit to learn more about these awareness projects and others. Interested in volunteering for the NMF, contact Kathy Jeffers, Manager of Volunteer Development, at kjeffers@marfan.org
Wanna Ask a Question Anonymously?
If you would like to ask a question in the NMFconnect forum, but would rather remain anonymous, contact Jennifer Buffone (click on her profile in the Members section) and she will serve as your proxy.
