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Mark Your Calendar for the 2018 Annual Conference

Our next annual conference is July 12-15, 2018, in Santa Clara, California!  Registration will be up in early 2018. Please make sure you sign up for emails on our website so you can be among the first to learn about conference registration, scholarships, patient evaluations, and more. Visit today!  

Latest Activity

Susan Leshen left a comment for prasad chand
16 hours ago
prasad chand is now a member of Connect
16 hours ago
Susan Leshen left a comment for Richard Ferrer
Sep 18
Profile IconRichard Ferrer and Gordy joined Connect
Sep 18


New diagnosis 13 Replies

Started by Amanda B in Uncategorized. Last reply by Rosemary Barker Sep 18.

severe early onset marfan 6 Replies

Started by Amy in Uncategorized. Last reply by Amy Sep 12.

Diagnosis and treatment at age 13

Started by Patricia in Uncategorized Sep 12.


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