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The Marfan Foundation and VASCERN, the European Reference Network, are powering the first-ever E3 International Summit: Educating, Empowering, and Enriching Our Community. The online event will provide unique access to presentations and live question and answer sessions on Marfan, Loeys-Dietz, VEDS (vascular Ehlers-Danlos), Stickler syndrome, and related conditions. Summit registration is free, but is required to participate in sessions. More than 850 have already registered – are you in?

 Over the course of three weeks – from August 25 through September 12 – the E3 Summit features nearly 70 presentations in seven languages: English, Spanish, Italian, French, German, Dutch, and Russian. Presentations will include live and pre-recorded talks, along with live question and answer periods with the experts. Presentations commence at 12 noon Eastern Time and 7:30 pm Eastern Time to accommodate people in most parts of the world.

 E3 Summit highlights include:

  •  Medical experts from nine different countries: US, Canada, Spain, Belgium, Italy, Germany, England, France, and The Netherlands
  • Presentations on the ABCs of Marfan in seven different languages
  • Research talks that address recent breakthroughs and hope for the future
  • Several specialized talks on each of the following conditions: Marfan, VEDS, Loeys-Dietz, Stickler Syndrome, and Heritable Thoracic Aortic Conditions
  • A focus on treating and coping with pain, with presentations on pain management, building resiliency, physical therapy, and medical marijuana
  • Presentations that address children’s medical issues related to Marfan, VEDS, and Loeys-Dietz, as well as how to deal with your child’s school, anti-bullying techniques, and preparing your child for surgery
  • Presentations on pregnancy, foot and ankle pain, eye issues, dental concerns, lung issues, and more
  • Talks on topics that can enhance quality of life, such as the healing power of laughter, art therapy, and mental fortitude
  • Opportunities to connect with other people in the worldwide community through the Summit app
  • Participation in the Summit requires a desktop or laptop computer, tablet, or smartphone as all presentations will be online.

To register, please go to


We hope you can take advantage of this incredible opportunity to hear information from the experts and meet people from all over the world – from the comfort of your own home!



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