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New Awareness Project Guides and Tool Kits

Awareness Saves Lives! Interested in raising awareness in your community but not sure how? Check out our new awareness tool kits. There's a kit for everyone from organizing an awareness table to doing a school focused project or raising awareness among medical professionals. These new guides/tool kits provide step by step information on how to organize these awareness activities and provide you with everything you will need to host a successful awareness event. Visit, click "Get Involved" and join the fight for victory today!


Survey: Have you been Genetic tested or not? 210 Replies

Started by Allison Hoyt in Uncategorized. Last reply by Emily Lindsey 3 hours ago.

Getting Closer to Answers?!?! 2 Replies

Started by Theresa in Uncategorized. Last reply by Heidi Reardon 3 hours ago.

how much do you weigh, and how old are you 168 Replies

Started by Benjamin Paul Gantz in Uncategorized. Last reply by Heidi Reardon 6 hours ago.

Blog Posts

gaining weight

Posted by karen thompson on July 15, 2014 at 9:16am

Melissa's story on Marfan Syndrome Awareness

Posted by Jonathan Keller on July 14, 2014 at 1:48pm


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