So this is a little update from the last time I was on here. I just recieved my records from a couple years ago. I don't recal every being told my tricuspid valve had some regurigitation back then, I thought it was a new diagnosis a month ago. Turns out it was not. My Aortic Root was at 3.8cm in 2007, and I have no idea what the current echo showed. other that prolapse from both the Mitral Valve and the Tricuspid valve. From what I understand 2-3.5cm is norma;, over 4cm is somthing to be watc

Hey long time no post! I hope all is well with my friends. I am still doing well after my surgery. I did have to go back in and have the staples removed and since then my scar has turned into a "Keloid" ugly and thick. I was complaining to my husband one day about how ugly it is and he said, "It's not ugly ~ it means you're alive" That put it in to prespective for me.

Now I have a weird question. On Feb 13th my son was in a serious car accident and my mini van was totalled, tha

Someone asked me to tell a little about myself in greater detail, so, here goes it. I am Kaitlyn Rene', I am 14, and... I have Marfan. I am 6' 1", and I was diagnosed at about age 7, and had a pectus excavatum repair shortly after. My mother passed away from an aortic aneurysym in October of 2006, naturally, she also had the disease. My grandfather passed away in 2002, he had Marfan, but he passed of Cancer. I have scoliosis, glasses, and I am on Atenolol. I am not thin, But st