"Thanks, I am aware of that, but just wanted to know if any Marfanoid experienced this, NOT being on meds. It would make me b less concern about my heart (with so many other things going on with me) when it acts up; but base on Maddison's…"
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Latest Activity
"That's good to know! Just wanted to know if I need to b concerned. But regardless I will b especially knowing my brother had an heart attack last year. He is older than I am. He has scolioses, and minor heart problems. He has Polio not dx with…"
Maddison Woody replied to Maureen Hinds's discussion Dissection"Mine's slightly dilated, but I have no problems. I'm doing better than the doctors expected and have never had surgery."
Maddison Woody replied to Regina Natasha Sullivan's discussion Dislocated lens"What's wrong with his feet? The surgery shouldn't bother him much but to leave him irritable about it and have his eyes itching."
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Dissection 4 Replies
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Dislocated lens 3 Replies
Started by Regina Natasha Sullivan in Uncategorized. Last reply by Maddison Woody 4 hours ago.
Eye surgery 2 Replies
Started by Susan O'Neill-Wood in Uncategorized. Last reply by Maddison Woody 4 hours ago.
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Howdy!
Hi everyone z here
Well, we finally got Ray back on insurance and he is back on his blood pressure meds. Of course the doctor said that it was not for high blood pressure, but to keep his heart rate low. I never knew that. So know I am really watching him like a hawk.
He is back at the Speedway today as I write and he is wanting to find another job outside the warehouse he is currently at because his right shoulder is hurting a lot. I asked him to ask the doctor if it could be…
ContinuePosted by Zelda Abel on May 12, 2012 at 4:53pm
Feeling very empty today
I'm sitting here feeling very empty today and tearful of what would have been my son TJ's 28th birthday tomorrow. I miss him so much and the guilt of "I wish I would have been persistent with the Dr's about him going to a specialist". No matter how much counseling I have gone through and the fact that I know his job was completed here on earth. The ache of loosing a child will never go away. I wish I could have one more day with him to say what I need to say.
Posted by Kathy Huber on May 1, 2012 at 1:53pm — 5 Comments
BRIGHT LIGHTS
Does any knows y our eyes cannot tolorate bright light? Thanks
Posted by Maureen Hinds on April 21, 2012 at 5:13am — 3 Comments
SUNKEN EYES
I have noticed a few Marfan with sunken eyes,...like the eyes a set deep in. I have always been like that 2...just wondering if this is common among us?
Posted by Maureen Hinds on April 11, 2012 at 12:32pm — 5 Comments
Popping after open heart surgery?
My son had is open heart surgery 5 weeks ago and has been feeling this "popping" that started a week ago. Anyone have this? What did you do?
Posted by roseline hartmann on April 1, 2012 at 12:51pm — 3 Comments
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